Northside Hospital Perinatal Loss Office

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 This page was last modified on 09/02/10

 

Some sites provide medical information and some provide emotional support,

resources, and memorials.

 

Please contact us at atlantapnl@live.com if you discover website that are no

longer active or if you have suggestions for additions to our list.   

 

Please keep in mind that sites that are marked "medical information" may

describe medical conditions, may contain medical terminology or phrases

(such as referring to a miscarrried baby as a "fetus," or using the term

spontaneous abortion" for a miscarriage). 

 

None of this information is intended to replace information received

from your physician. 

 

Sites are grouped by category but not listed in any particular order.

 

 

All perinatal losses:

Faces of Loss, Faces of Hope is a place for us to come together and share our

stories and our faces with others who may be looking for reassurance that they

are not alone:  www.facesofloss.com

 

The American Pregnancy Association is a national health organization committed

to promoting reproductive and pregnancy wellness through education, research,

advocacy, and community awareness:  www.americanpregnancy.org/pregnancyloss

 

A Place to Remember provides uplifting support materials for those who have

been touched by a crisis in pregnancy or the death of a baby: 

http://www.aplacetoremember.com/index.html

 

Grief Watch:  Resources for both bereaved parents and professional caregivers. 

This organization was created by Pat Schwiebert, an RN with extensive experience

in perinatal bereavement.  Among other things, she is the author of Tear Soup,

When Hello Means Goodbye, Still to be Born, A Grandparents Sorrow, and Strong

and Tender (a book for fathers).  www.griefwatch.com

 

SHARE Atlanta:  Local grief support groups, memorial services, workshops,

and outreach for healing and advocacy; memory bricks and angel memorial

garden located in Sandy Springs, Georgia; phone support, website that

contains over 400 pages and includes forums, written materials, and

opportunities for sharing.  http://www.shareatlanta.org/legacy/main.htm

 

SHARE (national office):  Support, education, information, and resources for

parents and professionals touched by perinatal loss. www.nationalshare.org

 

Missing GRACE Foundation:  Resources and support for families

that have experienced pregnancy loss, infant loss, infertility, or adoption

and to advocate for comprehensive, patient-focused prenatal care for all women.

Five core areas encompass the heart of the mission:

Grieve, Restore, Arise, Commemorate and Educate.  www.missinggrace.org

 

First Candle:  Dedicated to safe pregnancies and the survival of babies through

the first years of life. Our current priority is to eliminate Stillbirth, Sudden

Infant Death Syndrome (SIDS) and other Sudden Unexpected Infant

Deaths (SUID) with programs of research, education and advocacy.  Grief

counselors available 24/7 (toll free) at 1 (800) 221-7437. www.firstcandle.org

 

HopeXchange offers information, educational and uplifting articles, booklets,

pamphlets, books, miscarriage FAQs, extensive list of links and resources, and

free monthly newsletter  www.hopexchange.com

 

HAND (Helping After Neonatal Death): To help parents, their families, and

their healthcare providers cope with the loss of a baby before, during or after birth.

www.handonline.org

 

SANDS:  Self-help support group comprised of parents who have experienced

the death of a baby through miscarriage, stillbirth, or shortly after birth

www.sandsvic.org

 

 

 

Amniotic Band Syndrome:

http://www.amnioticbandsyndrome.com/

 

 

 

Anencephaly:

www.ninds.nih.gov/disorders/anencephaly/anencephaly.htm

 

www.anencephaly.net

 

www.anencephalie-info.org/e/index.htm (also has information

in French, Spanish, and several other languages)

 

 

Antiphospholipid Syndrome:

www.mayoclinic.com/health/anti-phospholipid-antibody-syndrome/AN00140

 

www.intelihealth.com/IH/ihtIH/EM/9339/30957.html

 

http://www.medicinenet.com/antiphospholipid_syndrome/article.html

 

http://www.apsfa.org/aps.html

 

http://sclero.org/medical/symptoms/associated/antiphospholipid/a-to-z.html

 

 

Art and Music Relating to Grief:

The Secret Club Project: an award-winning international project featuring

over 45 artists exploring infertility, miscarriage and stillbirth

http://secretclubproject.org/home.html

Music Therapy:  http://www.musictherapy.org/

Creativity Grief:  http://www.recover-from-grief.com/creativity-grief.html

The website teaches you how to:

      Draw out your emotions with pencil, pastels, and ink

      Discover the fluid and vivid world of painting

      Find 3D stress relief through sculpturing

      Craft a "grief mask," a direct window to your soul

      Build an altar or memory box to reconnect with your lost one

      Tribute Scrapbooking for family grief therapy

      Start your private "Grief Journal"

 

 

Blogs

 

 

 

Cancer and Pregnancy:

http://www.pregnantwithcancer.org/

 

http://www.cancerandpregnancy.com

 

http://www.cancer.gov/cancertopics/pdq/treatment/

breast-cancer-and-pregnancy/Patient

 

Blog that documents a mom's experience after being diagnosed 

with Hodgkins Lymphoma two weeks after finding out she was

pregnant.  She started chemo when she was 10 weeks pregnant. 

Her daughter was born at 36 weeks (healthy):   

http://pregnantcancer.blogspot.com/

 

http://lymphoma.about.com/od/hodgkinlymphoma/qt/pregnancy.htm

 

 

Children and Grief

 

 

 

Chromosomal/Genetic Conditions:

http://www.marchofdimes.com/professionals/14332_1209.asp

 

http://www.genome.gov/11508982

 

http://www.chkd.org/HealthLibrary/Content.aspx?pageid=P02115

 

http://www.rarediseases.org/search/rdblist.html

 

http://www.aheartbreakingchoice.com/risks.html

 

Congenital Diaphragmatic Hernia (CDH):

www.cherubs-cdh.org

 

www.pedisurg.com/PtEduc/Congenital_Diaphragmatic_Hernia.htm

 

http://fetus.ucsfmedicalcenter.org/cdh/

 

 

Cystic Hygroma:

http://genetics.emory.edu/pdf/Emory_Human_Genetics_Cystic_Hygroma.PDF

 

http://www.aheartbreakingchoice.com/cystichygroma.html

 

 

Death of Child at Any Age:

www.compassionatefriends.org

 

www.missfoundation.org

 

www.bereavedparents.com

 

www.bereavedparentsusa.org

 

www.kindermourn.org

 

 

Difficult Decisions in Pregnancy:

www.aheartbreakingchoice.com

 

www.poorprenataldiagnosis.com

 

selective reduction:  http://www.thelaboroflove.com/forum/loss/sr.html

 

related to maternal health issues:  

http://www.afterabortion.com/maternal_health.html

 

 

Difficult decisions in NICU:

http://www.pregnancy.org/question/difficult-decision-making-nicu

 

 

Ectopic Pregnancy:

http://www.advancedfertility.com/ectopic.htm

 

http://www.ectopicpregnancyfoundation.org/

 

http://www.marchofdimes.com/pnhec/188_851.asp

 

http://www.virushead.net/nbaby.html

 

http://www.americanpregnancy.org/pregnancycomplications/ectopicpregnancy.html

 

 

Faith-Based Support:

Christian: Hannah's Prayer:   www.hannah.org

 

Christian: MEND (Mommies Enduring Neonatal Death): www.mend.org/home_index.asp

 

Christian:  http://christianforums.com/forumdisplay.php?f=505

 

Christian:  www.healingheart.net

 

Jewish: http://www.reclaimingjudaism.org/life%20cycle/miscarriage.htm

 

Jewish: http://www.jewishwomensnet.com/miscarriage.php

 

Jewish: 

http://www.myjewishlearning.com/life/Life_Events/Lifecycle_Ritual/

Other_Life_Passages_101/Why_New_Ceremonies/Miscarriage.shtml

 

Jewish: 

http://www.ncjwny.org/services_plsp.htm

 

Jewish: 

http://www.ritualwell.org/lifecycles/pregnancyinfertility/Pregnancy%20Loss/GrievingAfterLoss.xml

 

 

Father’s Grief

 

 

 

 

Funerals, Memorial Services, and Creating Memories:

http://www.silentgrief.com/articles/index.cgi?view_records

=1&Category=Miscarriage&ID=83

 

http://www.handonline.org/parents/memories.html

 

http://www.creative-funeral-ideas.com/

 

http://dying.about.com/od/childormemorialservice/

Planning_a_Childs_Memorial_or_Funeral_Service.htm

 

http://www.calgaryhealthregion.ca/programs/

infantloss/funeralplanning.htm

 

http://www.memorialserviceplanning.com/

 

sample infant obits:  

http://babydekar.com/sample-infant-obituaries/

 

www.nilmdts.org

 

 

Grandparents and Grief

 

 

 

Group B Strep: 

http://www.americanpregnancy.org/pregnancycomplications/groupbstrepinfection.html

 

http://www.dhpe.org/infect/strepb.html

 

http://www.marchofdimes.com/professionals/14332_1205.asp

 

http://www.groupbstrep.org/

 

 

Heart Defects:

http://tchin.org/index.htm

 

http://www.littlehearts.org/

 

http://www.pediheart.org/parents/defects/HLHS.htm

 

 

HELLP Syndrome: 

http://www.hellpsyndrome.org/

 

www.nlm.nih.gov/medlineplus/ency/article/000890.htm

 

Hydrocephalus:

http://www.hydroassoc.org/

 

http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm

 

http://www.forparentsbyparents.com/index.html?pn=1291

 

http://www.ghrforg.org/faq.htm

 

http://www.chw.org/display/PPF/DocID/35471/Nav/1/router.asp

 

 

 

Hypermesis: 

http://www.angelfire.com/nt/hugs/

 

http://www.hyperemesis.org/

 

 

 

Incompetent Cervix:

http://www.pediatrix.com/body.cfm?

 

xyzpdqabc=0&id=7&action=detail&AEProductID=Adam2004%

 

5F14&AEArticleID=000194&AEArticleType=Special%2Dcare%20pregnancies

 

http://pregnancy.about.com/cs/incompetentcervix/a/aaincomp.htm

 

www.americanpregnancy.org/pregnancycomplications/incompetentcervix.html

 

http://www.babycenter.com/0_cervical-insufficiency-incompetent-cervix_1425796.bc

 

http://www.marchofdimes.com/pnhec/188_20201.asp

 

http://www.obfocus.com/resources/cervical.html

 

http://www.cpdx.com/cerclage/index.html

 

 

 

ITP and Pregnancy:

http://www.itppeople.com/preg/

 

 

Lupus and Pregnancy:

http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutindividualized01.aspx?articleid=314&zoneid=89

 

 

Miscarriage:

http://pregnancyloss.info/

www.ivf.com/misc.html

www.inciid.org/forums/miscarriage/index.html

www.miscarriageassociation.org.uk/ma2006/index.htm

http://www.americanpregnancy.org/pregnancycomplications/miscarriage.html

http://www.emedicinehealth.com/miscarriage/article_em.htm

http://www.babycenter.com/0_understanding-miscarriage_252.bc

http://www.marchofdimes.com/professionals/14332_1192.asp

http://www.justmommies.com/articles/faq-miscarriage.shtml

http://www.angelfire.com/emo/miscarriage/

http://www.miscarriagesupport.org.nz/

http://miscarriage.homestead.com/

http://miscarriagehelp.com/

 

 

Molar Pregnancy:

http://pregnancy.about.com/cs/pregnancyloss/a/aa072599.htm

 

 

Multiples (Loss of one or more babies in a set of multiples)

 

 

Parents Partnered for Preemies (Northside Hospital)

 

 

 

 

Perinatal Palliative Care/Perinatal Hospice

 

 

 

 

Picture Re-touching and Portraits:

www.e-retouch.com/Pages/about.htm

www.portraitsbydana.com/

www.pencil-portrait-drawing-artist.com/memorials.html

babyangelpics.com/

www.babyphotoretouch.com/

http://www.drawnbydebbie.com/memorial.htm

http://www.heatherspears.com/drawings/bereavement.htm

 

 

Placenta Disorders and Problems:

http://www.marchofdimes.com/professionals/14332_1154.asp

http://www.marchofdimes.com/pnhec/188_1128.asp

 

 

Potter’s Syndrome:

http://www.potterssyndrome.org/

 

 

Pregnancy and Parenting after Loss

 

 

Pregnancy Induced Hypertension (PIH), Pre-Eclampsia, Eclampsia

http://www.preeclampsia.org/

http://www.pre-eclampsia.co.uk/

www.medicinenet.com/pregnancy_induced_hypertension/article.htm

www.gynob.com/htiup.htm

pregnancy.about.com/od/hypertensionpre/a/pihinpg.htm

familydoctor.org/064.xml (Spanish version available)

www.mayoclinic.com/health/preeclampsia/DS00583

www.webmd.com/content/article/51/40800.htm

 

 

Premature Rupture of Membranes (PROM):

http://www.kanalen.org/prom/

http://www.pediatrix.com/body.cfm?xyzpdqabc=0&id=7&action=detail&AEProductID=Adam2004%5F14&AEArticleID=000143&AEArticleType=Labor%20and%20delivery

http://www.mommyguide.com/modules.php?op=modload&name=News&file=article&sid=51&mode=thread&order=0&thold=0

 

 

Prenatal Testing:

http://www.pediatrix.com/body_obstetrix.cfm?id=359&oTopID=93

 

 

Rare disorders:

http://www.rarediseases.org/

 

 

Recurrent or Repeated Losses:

www.fertilityplus.org/faq/miscarriage/rpl.html

www.ivf.com/fert_miscarriage.html

www.kaisernetwork.org/Daily_reports/print_report.cfm?DR_ID=9716&dr_cat=2

www.sciencedaily.com/releases/2000/12/001228091316.htm

www.scienceblog.com/community/older/2002/F/20022314.html 

www.aphroditewomenshealth.com/news/20020314234011_health_news.shtml

http://miscarriage.about.com/od/thrombophiliadisorders/i/mthfr.htm

http://www.drdaiter.com/pregtable.html

http://messageboards.ivillage.com/iv-bhpregloss

http://www.reproductivegenetics.com/repeated_loss.html

http://www.abc.net.au/health/yourstories/stories/2006/11/08/1834155.htm

http://community.babycentre.co.uk/groups/a164715/recurrent_miscarriage_support

 

 

SIDS

 

 

 

 

Stillbirth:

http://www2.marshfieldclinic.org/wissp/

www.stillnomore.org/

www.uk-sands.org/

www.stillbirthalliance.org/

http://www.uwalumni.com/home/onwisconsin/archives/winter06/stillbirth.aspx

http://www.firstcandle.org/

http://dailystrength.org/c/Stillbirth/support-group

http://www.missinggrace.com/Links.html

http://www.sandssa.org/

http://www.sidsalliance.org/advocacy/adv_alert_052108.html

http://www.associatedcontent.com/article/105992/how_to_support_friends_during_a_miscarriage.html

http://www.momstudy.com/

http://www.nichd.nih.gov/research/supported/scrn.cfm

https://scrn.rti.org/

http://whsc.emory.edu/_pubs/ph/phfall07/preventing_stillbirths.html

http://www.uthscsa.edu/hscnews/singleformat.asp?newID=2695

http://www.curekids.org.nz/stillbirth.htm

http://preventstillbirth.wordpress.com/

Blogs: http://babylossdirectory.blogspot.com/2008_08_01_archive.html

http://www.choa.org/default.aspx?id=4900

 

 

 

 

Triploidy:

http://children.webmd.com/triploid-syndrome

 

 

Trisomy:

www.trisomy.org/

www.ds-health.com/trisomy.htm 

http://www.chromosome18.org/Genetics/FactsAboutGenetics/tabid/132/Default.aspx

http://www.ob-ultrasound.net/xdown.html

 

 

Turner Syndrome:

http://rarediseases.about.com/cs/turnersyndrome/a/020803.htm

http://www.turnersyndrome.ca/

 

 

Twin-to-Twin Transfusion:

http://www.twin2twin.org/Research05.htm

http://www.fetalhope.org/page.php?id=1

 

 

Uterine Fibroids:

http://www.acog.org/publications/patient_education/bp074.cfm

 

 

VATER Syndrome:

http://www.cincinnatichildrens.org/health/heart-encyclopedia/disease/syndrome/vacterl.htm